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Family Advisory Network

Improve the CHoR experience, and get support from others

In our mission to provide the best care possible to children and their families, we want to hear from you. The CHoR Family Network – known around here as CHoR FAN – allows you to provide insight and feedback so that we can improve our processes, facilities, communication and treatment. For adult caregivers, we know the experience of taking care of a child with complex medical needs can be difficult. That’s why we created a support group, MOMENTS, designed specifically for people like you to meet others who are experiencing, or who have experienced, similar health care journeys.

Family Advisory Network

CHoR FAN is made up of parents and caregivers who meet once per month to tell us about their experiences. We pose questions; you provide opinions, answers and suggestions on how we can provide better service. As a family advisor, you will partner with other family members, providers and team members to help make improvements to the patient experience. We are looking for volunteers who have a child that has received care at CHoR over the past two years who can:

  • Attend monthly meetings
  • Commit to serving a term of 1 to 2 years
  • Share personal experiences in a constructive manner
  • Listen and hear multiple points of view
  • Demonstrate compassion, understanding…and a sense of humor
  • Maintain confidentiality
  • Be sensitive to the diverse patient population we serve
  • Work collaboratively and enthusiastically

Testimonial

“Becoming a part of the solution is very empowering. I have witnessed change. You can step out of the everyday medical experience and have the opportunity to shape the experience for both your family and others.” - Liz Burnett, CHoR FAN member

 

Join MOMENTS

MOMENTS is a support group specifically designed for the caregivers of medically complex children. Our mission is to provide a safe, nurturing and supportive community for the many defining MOMENTS you experience while caring for a medically complex child. Caregivers have opportunities to connect through workshops, speakers and other educational opportunities