Experiencing stomach pain, diarrhea and other digestive symptoms isn’t easy. But with a little planning, some active communication and tools for handling stress, you can help ensure issues like these won’t keep your child from having fun and just being a kid!
Inflammatory bowel disease (IBD) is a chronic, lifelong inflammatory disease of the digestive system. IBD is generally divided into two different disorders, Crohn’s disease and ulcerative colitis, based largely on which part of the gastrointestinal (GI) tract is involved. Crohn’s disease can affect any part of the GI tract, while ulcerative colitis involves only the large intestine (colon). IBD often presents with multiple GI symptoms, including stomach pain, diarrhea and weight loss.
IBD is often confused with irritable bowel syndrome (IBS). While both of these conditions can cause some of the same disruptive GI symptoms, they are different. With IBS, there are no visible signs of damage within the digestive tract. Instead the GI symptoms of IBS are a result of altered nerve signals in the GI tract and brain that affect the sensation of pain and movement of muscles within the GI tract.
Making sure your child is getting their medications as prescribed can be helpful in preventing digestive symptoms from occurring. Having a set medication time as part of your morning routine helps. Set a phone alarm as a reminder.
While a child may not necessarily want to announce their condition to everyone, as long as they’re comfortable, it may be good idea to let a close circle of friends in on what’s going on. This can help your child feel less alone with their illness and can prove to be a source of support. You can help your child practice how they may tell their friends. Their medical team can also help with ideas on how to broach the subject.
Dealing with GI symptoms AND all of life’s other uncertainties can be stressful. Thankfully there are ways to help a child cope with and manage the stress.
Some days will be challenging; sometimes there’s just no getting around that. Before things get too uncomfortable it can be helpful to make the school (including teachers and the school nurse and counselor) aware of your child’s diagnosis. You can then work together on any special accommodations that may be helpful once schools fully reopen (when it’s safe to do so after the pandemic).
In situations where symptoms are very disruptive and academic or other accommodations are necessary, a specialized school plan, called a “504 plan,” may be worth pursuing with the guidance of your child’s medical team and the school. If you think this may be necessary, don’t hesitate to discuss this with your child’s medical team.
Our goal is always to get children feeling well enough to participate in school and any other activities they’d like, with the thought that their health conditions should not interfere with what they want to do in life. As always, if your child is having issues, or you have concerns, it’s worth contacting their medical team for further guidance.
Learn more about how our GI team cares for the simple and complex